A New Interactive Web Site and Social Network for Genomic Applications: To Engage, Convene and Communicate with Groups and Individuals to Help Realize the Promise of Genomics in Healthcare and Disease Prevention

Theoretical Background and research questions/hypothesis: In July 2009, CDC’s National Office of Public Health Genomics (NOPHG), NCI’s Division of Cancer Control and Population Sciences, and other stakeholders formed  the Genomic Applications in Practice and Prevention Network (GAPPNet™) to accelerate and streamline the effective and responsible use of validated and useful genomic knowledge and applications, such as genetic tests, technologies, and family history, into clinical and public health practice. A key function of GAPPNet is to engage, convene, and communicate with organizations, groups, and individuals to increase support for the GAPPNet functions: knowledge synthesis, evidence-based recommendation development, translation research, and translation programs.  

Methods:

NOPHG and the University of Michigan Center for Public Health and Community Genomics developed a Web site for GAPPNet, with input from the GAPPNet Planning Group. We considered the mission, functions, and activities of GAPPNet, and identified target audiences for the Web site and information and resources that would be of interest to them. We also gathered and borrowed ideas for design, navigation, and content from other genomics and health-related Web sites. Lastly, we developed and implemented an overall framework for the home page and underlying pages with the following major sections: About GAPPNet, GAPPNet Knowledge Base, Genomic Translation Projects, Get Involved, What’s New, and GAPPNet Social Networks. The GAPPNet Web site was designed using Dreamweaver CS4 software and according to federal guidelines and regulations to ensure equal access by users of all abilities.  We will use Google Analytics software to collect, analyze, and interpret Web statistics on a weekly and monthly basis. This information will be used to understand user trends and to improve the Web site.  

Results: NOPHG and the University of Michigan Center for Public Health and Community Genomics officially released the new GAPPNet Web site (www.GAPPNet.org or www.sph.umich.edu/gappnet/) in May 2010. The Web site provides a central place to learn about GAPPNet and new developments in research, policies, and programs on the use of genomic applications to improve health and prevent disease. The Web site also provides information about how to get involved in GAPPNet and opportunities for professional and public networking and discussions through a NING Web-based social networking site (gappnetgeneralinterest.ning.com/). There is an interactive map showing genomics translation projects that are currently in progress in the United States. Additionally, the Web site provides access to a searchable knowledge base on genomic applications (http://www.hugenavigator.net/GAPPKB/home.do) and an online journal (knol.google.com/k/gappnet/evidence-for-genomic-applications/1mzqt0rqcvvdd/12#) featuring evidence reviews and summaries.  

Conclusions: The GAPPNet Web site offers a unique online resource for engaging, convening, and communicating with organizations, groups, and individuals that are involved in GAPPNet as well as the general public. These efforts will serve as an important role in helping to realize the promise of genomics in healthcare and disease prevention.  

Implications for research and/or practice: The GAPPNet Web site may serve as an example for other health organizations to use in establishing and implementing plans for engaging, convening, and communicating with groups and individuals through interactive Web sites and social networking applications.