Rhode Island Department of Health
Informatics
Three Capitol Hill
Providence,
RI
USA
02908
Email:
sally.johnson@gmail.com
Biographical Sketch:
People with chronic conditions benefit from evidenced-based medicine, from being treated as a whole person, not just a disease, and from developing skills to manage their care and their behavior. Both Web 2.0, the trend towards using web connectivity and design to facilitate information sharing and collaboration, and PHIN 2.0, the guidelines designed to insure secure sharing of public health information, help patients achieve these goals.
Patients with chronic conditions are increasingly becoming “ePatients” – they and their caregivers are going online for help. ePatients seek not just information that’s -- 1.0. They have raised the bar. They also seek emotional support to cope with their condition. They want tools to motivate them to modify their behaviors to improve their health. They want access to, and control over, their health data. They want to know how varying treatments can impact them. They want to have the ability to use the web to keep themselves healthy.
This talk will briefly introduce some of the best web 2.0 sites for seeking help and health related information, patient community building, personal health information collection, evidenced-based reporting and behavioral modification available for persons with chronic conditions. It will explain how meeting PHIN’s goals will add value to sites like these and the persons who use them to improve health outcomes.
This talk will also discuss the need to strengthen and form new collaborative teams with payers, providers and patients to help doctors, help patients help themselves.