Multi-method Formative Research to Understand the Needs and Internet Use of Persons Recently Diagnosed with HIV

Background:
Many HIV-positive persons, including those recently diagnosed, seek health information online. HIV researchers, as well as treatment and program staff, need to understand the ways in which persons recently diagnosed with HIV (PRDH) use the Internet, and its potential for use in STD/HIV prevention. With this understanding, web sites to assist PRDH can be created and maintained more effectively.

Objective:
The goal of this study is to conduct formative research to describe the needs and preferences of PRDH who seek health information and support online.

Method:
Study activities include multiple formative research methods: 1) qualitative interviews (n=80) with a diverse sample of PRDH (including heterosexual men and women, men who have sex with men, and male-to-female transgender individuals) recruited from clinics and online regarding their needs following diagnosis and ways in which they used the internet before and after diagnosis; 2) qualitative interviews (n=30) with administrators of HIV-related websites; 3) analysis of HIV-related websites (n=100); and 4) secondary analyses of unpublished datasets.

Result:
Preliminary findings from interviews of PRDH suggest that participants prioritized mental health resources to address stigma and serodisclosure, listings for basic (e.g., housing) and medical services, updated medication and treatment information, and access to support from persons who have experience living with HIV. Data will be synthesized across the multiple methods to emphasize current understanding of the needs of PRDH, describe available online STD/HIV resources, identify gaps in online services, and develop additional resources for this population.

Conclusion:
Incorporating Internet-based STD/HIV prevention resources into existing STD/HIV websites that cater to PRDH may be a critical next step for secondary HIV prevention.

Implications:
These findings can suggest specific topics and strategies that may be most successful in attracting PRDH to STD/HIV interventions online.